The Philanthropia Europe Foundation celebrates the adoption of the United Nations resolution on persons living with rare diseases

This historic resolution is the result of an unwavering three-year advocacy campaign, partly led by Rare Diseases International, an organisation supported by the Philanthropia Europe Foundation under the aegis of the Fondation de Luxembourg.

The resolution also affirms that addressing the needs of Persons Living With a Rare Disease (PLWRD) is essential to advancing the 2030 Agenda for Sustainable Development. This includes access to education and decent work, poverty reduction, tackling gender inequality, and supporting the inclusion of PLWRD in society.

PLWRD advocates celebrated this significant milestone, marking what they hope will be greater integration of rare diseases into the UN system’s agenda and priorities, and more broadly, a much-needed shift in the global policy landscape.

The Philanthropia Europe Foundation is proud to support Rare Diseases International and its advocacy capacity-building programme within the United Nations system, a support that directly contributed to the adoption of this resolution.

Read the joint press release from Rare Diseases International, the NGO Committee for Rare Diseases and Eurordis Rare Diseases Europe here.